MySpellingSucks - Latest Comments

Re: Count Down 3 weeks – Selective Dorsal Rhizotomy

metzgerbusiness — Mon, 05 Sep 2011 01:39:04 -0000

I wish I could offer advice on finances. I know if money were not an issue I'd go with the best. For me even going with the best I had concerns. I even called Dr. Park's office and threatened not to go forward with the surgery if he didn't personally call me back. I wanted to speak with the man who was going to cut into my daughters backbone and sever some of the nerves in her spinal cord. I don't know anything about Dr. Boydston so I can't say what I think about his work. Here is what i can tell you about Haley. She used a walker until she was about 3.5 and then became an independent walker. She was amazed at how loose her legs felt after the surgery. Haley was seven years old when she had the surgery. She has recovered from the surgery but it's taken her nearly 15 months to get back all the endurance she had prior to the surgery. That said she finds life much easier now and we would do it again. I do want to mention one other thing. In the last 6 months or so she has developed minor back pain. We think it's due to her growth as it didn't exist right after the surgery but we just don't know for sure if it's related to the surgery or not. That said we would still have done the surgery because things are easier for her now.

Re: Count Down 3 weeks – Selective Dorsal Rhizotomy

Nicole — Sun, 04 Sep 2011 21:17:44 -0000

Hi. I just came across your blog tonight. My daughter is 4 and we are thinking about SDR. We went to St. Louis and met with Dr. Park, who did say she would benefit from the procedure, but our insurance will not cover it out of state. We live in GA and will be going to meet with Dr. Boydston in Atlanta in a few weeks. If he feels she is also a canidate we have to decide to do it with the best doctor(Parks) and raise all the money or go with the dr. that our insurance will cover. I don't know how to make that decision. How was your daughter before SDR? Was she walking unassisted? How old was she? My daughter uses a walker and is not able to stand by herself. I would love to get any adviice you may have. Thanks. Nicole

Re: Another Surgery

metzgerbusiness — Sat, 02 Apr 2011 19:58:13 -0000

Thanks Todd. It's too early to think much about it but We appreciate the prayers.

Re: Another Surgery

Todd Schnick — Fri, 01 Apr 2011 18:55:49 -0000

God sir, our prayers our with you. Let us all know how we can help with the burden... God bless you all.....

Re: A Note Every Parent of a Special Kid Must Read

Ellen Stumbo — Sun, 27 Mar 2011 22:37:10 -0000

A couple of things. First, I am wondering if I can post this on my blog and of course link to your blog and give credit to Sally (maybe she has a web-site?)
Second, my daughter is having a SDR in 3 weeks and I can use all the advice and encouragement I can get!
www.elliestumbo.blogspot.com
Thanks
ellenpdazo at hotmail dot com

Re: A Note Every Parent of a Special Kid Must Read

Ms. Ding — Thu, 24 Feb 2011 15:41:24 -0000

These are incredibly powerful. I can't tell you how many of these statements resonant with our family. Wow.

Re: Haley Presenting at Atlanan Jewish Book Festival

Todd Schnick — Thu, 18 Nov 2010 17:05:37 -0000

Saturday afternoons make perfect sense, but will be tough for a few weeks. We'll get it figured out! We can't wait to have her!

Re: Haley Presenting at Atlanan Jewish Book Festival

metzgerbusiness — Thu, 18 Nov 2010 12:14:18 -0000

Todd, Thank you. I'd love to do the Video Dust jacket. Do you think we could do it on a Saturday afternoon? That would probably work best for both Haley and I. I'm sure she would love to do the show too. If you want to do it with both Raye Lynn and Haley I'm sure it can be aranged.

Re: Haley Presenting at Atlanan Jewish Book Festival

Todd Schnick — Tue, 16 Nov 2010 09:36:11 -0000

this is awesome. we still need to get her Video Dust Jacket interview, and perhaps get her on the show??

Re: A Note Every Parent of a Special Kid Must Read

Kelly — Wed, 10 Nov 2010 12:54:21 -0000

Thank you. I happened upon this yesterday and it was just what I needed to read.

kelseycan.com

Re: A Note Every Parent of a Special Kid Must Read

Rayelynn Banks — Wed, 20 Oct 2010 20:44:21 -0000

That was a great article. Sally sounds amazing.

Re: Family Weekend Apple Picking

Rayelynn Banks — Sun, 17 Oct 2010 22:24:18 -0000

That was so cute and such happy music!!! Raye Raye

Re: Bullying – Florida story

The Franchise King — Mon, 11 Oct 2010 15:30:29 -0000

If I was the Dad, I'd have done about the same thing. (Or worse.)

When it comes to others hurting kids, I'm like an Airedale Terrier on heavy steroidal medicine.

Franchise King®

Re: Dolls

Rayelynn Banks — Mon, 11 Oct 2010 05:46:48 -0000

I am so glad you captured the moment. That is so creative. Raye Raye

Re: Dolls

Tmetzge — Thu, 07 Oct 2010 10:56:08 -0000

Those girls crack me up - this picture is hysterical! :)

Re: Bullying – Florida story

Del The Dad — Sun, 03 Oct 2010 21:56:40 -0000

I dont take bullying lightly like most do. It is awful and down right wrong what happened to this kid. I dont know a good word to use for it, sorry. I dont like people picking on others for any reason no matter the age. But the reality is people do. And while people continue to do, I will stand up and say something. I know I may sound fairly generic but I dont know any way better to come off serious. My point is kids dont just practice this behavior, and if they do parents need to correct their children, and if a parent cant, myself as a parent will and I hope others do also.

Re: Bullying – Florida story

Andrew Daniele — Thu, 30 Sep 2010 12:01:13 -0000

Setting examples for your children is certainly the best way to teach, but not at the expensive of the safety of your child. It really bothers me that the abuse that this poor girl was subjected to is being written off as simple bullying. She was snapped with condoms and then had broken condoms put on her head. She was assaulted by multiple children at the same time. If you think these actions are simply bullying then there is a serious breakdown in our society.

Re: Bullying – Florida story

Andrew Daniele — Thu, 30 Sep 2010 11:56:25 -0000

I must adjust my earlier tweets that brought me here to view your blog entry. You are very right as a dad your impulse is to defend your children with everything you have and I do agree that what my Jones did was excessive. My problem with the situation is that, as most things media driven, we only et part of the story. Did Mr. Jones attempt to rectify the situation prior to his outburst? Also, though at face value his actions seem to go to far, to treat him as a villain seems equally as excessive since his child was assaulted and ignored by, for instance, the very bus driver he threatened. Finally, and most importantly to me, the idea of the young abusers being portrayed as victims is ridiculous. Let us not minimize what preempted this outburst and ignore the fact that the young offenders what beyond simply bullying a child.

Re: Bullying – Florida story

Del The Dad — Mon, 27 Sep 2010 02:05:49 -0000

Thank you for seeing that we as the parents and adults can set example. I have mentioned this for quite some time, but too many just over look it. I think many understand that by being nice to others and showing respect, our children will do the same.

Like you stated with the kid not knowing any better, many parents can fall in the same category. But I think it’s important as online voices, bloggers, etc to set examples for peers and/or youth. I have come across some ridiculous and hateful behavior and people have just overlooked it like it and called it ‘drama.’ If people would have stepped up and told the person to chill out and stop, things would be different but the fact is the hate was around for a long time. But the sad fact is many don’t want to get involved in matters that don’t concern them. Hopefully people like that are never in the situation where they may need assistance from someone else. And if we pass this down to our children we just create the needed environment for bullies and ignorance. If people/kids realize it’s not acceptable then more stand up and the problem is dissolved.
Good stuff.
@DeltheDad

Re: Forgiveness

tiffany — Fri, 24 Sep 2010 22:41:10 -0000

Hey Kev - catching up on emails and hadn't read this till today. Honestly not sure whether Dad reads these or not. Funny that I couldn't help but think about this situation a little earlier this evening. I am so sorry for the way things are right now - it is truly heartbreaking.
Just wanted to let you know I love you :)

Re: Forgiveness

Dmastri — Wed, 22 Sep 2010 19:09:11 -0000

This is such a sad story. I hope your able to work things out. However, I do not always practice what I preach.

Re: Forgiveness

Brian — Sat, 04 Sep 2010 23:40:16 -0000

Wow. I hope and pray things will work out for you.

Re: Love – The Equation

Dr. Shawn — Sun, 29 Aug 2010 03:47:07 -0000

Lovely job my friend. We think alike :)

Re: Love – The Equation

Brian — Sat, 28 Aug 2010 23:33:08 -0000

Now that is one fine list.

Re: Haley Climbing

Rayelynn Banks — Mon, 23 Aug 2010 11:47:05 -0000

She is awesome!!!! Raye Raye